Name

Marinas Movements

Description

This is our daughter Marina Jayne ❤️ she was born October 3rd 2023 she is such a strong girl she has been through so much already in her one year of life she was born via C-section at 37 weeks we were told she had a large hole in her heart. She came and had to go to the NICU and stay for 3 weeks then transfered to another NICU. She was discharged home in November where she passed away 3 times we had to infant CPR different days in a row we were worried to death I thought I was going to lose her and finally I had it the last night we had to do CPR I called ambulance again and said this is it she needs to go somewhere. They took her to Children's hospital of VCU in Richmond VA and they saved her life! found out she had a rare genetic disorder called White Sutton Syndrome she was the first diagnosed with this at that hospital. It's a mystery really what could happen with this syndrome they placed and gtube she is on oxygen 24/7 and this is just the beginning❤️https://cash.app/$NoraGracee

Subscribers

253